Family Affair Rattery
Family Affair Ratz

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My Battle with Inflammatory Breast Cancer
This may not be for everyone, there is some graphic information here, but in sharing my journey I hope I can bring knowledge and understanding to anyone that has been touched by breast cancer!

While this is not a rat-related subject, it is something that I feel needs to be available for people to learn about if they are interested.  I am a woman of faith, and I am presenting my journey through emailed prayer requests that I and my husband have sent out to dear friends, family, and brothers and sisters in faith.  If you are a believer, I ask for prayers.  If you are not, I ask for you to read and consider, and send good thoughts my way! 

Feb. 12, 2008
First prayer request sent out to friends on a message board.

Feb. 13.
A brief informational request for prayer!

March 4
Information for diagnosis

March 10
Chemo delay, error in testing detected by Dr. Bagdasarian

March 11
An unexpectedly quick chemo re-authorization

March 13
After the first chemo session

March 23
After first chemo cycle, better idea of side effects

March 30
Just before second chemo session

April 8
MRI, measure of tumor, right side clear

May 2
God in Hollywood, or my bald teamster brothers and movie people

May 23
Pet/ct scan, called in early because of a cancellation

May 26
Pet/ct results, Great news!

June 25
End of first chemo regimen!

July 1
Doppler test results

July 18
Next pet/ct

July 21
Next steps in depth

July 28
Surgery date set!

July 31
Harry's appeal

August 3
Two days after the
mastectomy

August 7
My body's out of shock!  Good news!

August 25
"Boob and church" story

September 17
Next pet/ct

September 22
Mom's appeal

September 22
Real World Issues

September 24
What a turn around!

September 29
Rat fancy update

September 29
Second portocath installation prep.

October 8
New portacath is working!

October 28, 2008
Keeping on keepin on!

11-24-08
I have felt so good this past week! 

Sent 12-18-08
Good news on the latest scan

Jan. 26, 2009
Close to finishing chemo!

Sent Feb. 12, first request for prayer on a message board I belong to.
Hi all.
I am writing this because I am in need of prayers from all my friends who believe in God. I
have just been diagnosed with inflammatory breast cancer. It is an aggressive form of
cancer, but thank God I have already seen doctors, had biopsies, a mammogram and an
ultrasound, as well as a consult with a breast surgeon all in the last 48 hours. My next step
will be with an oncologist. I ask for prayers for healing, for remission and self containment,
and most of all for my husband and son who are struggling with me. I really appreciate all of
you! Thanks! Amy

P.S. Harry and I will not be at the online meeting tonight. We are going to church for a
special prayer service. We need to be there!

***************************

From: Amy Schultz
Sent: Wednesday, February 13, 2008 11:52 AM
Subject: Hi guys! I need your prayers.

Hello my friends! 
I am writing because I desperately need your prayers right now.  I have just been diagnosed with inflammatory breast cancer.  As we speak I am waiting for an authorization from my health care provider to go see an oncologist.  My course will be preadjuvant chemo, then a mastectomy, then more chemo, with the possibility20of radiation after that.  Please pray that 1.  For Harry and Willy.  That Harry and I handle this correctly with Willy, letting him know what he needs to know and allowing reactions, sharing and being honest, but not generating extra fear and worry.   Also that Willy have his mom around for a long time yet!   2.  That the cancer recede and be localized, so that the mastectomy will take it out completely.  I dont' know where it is yet, I am waiting for the oncologist to discover that, but God knows.  Please pray that He continue to have his hand on all of this!  3.  For complete recovery and healing. 

I went in because I have a stinker of a cold, so Monday I went to the doctor, and just asked her to take a peek at my left breast.  I had scheduled a physical and a mammogram for the end of February because I was a bit concerned, but just asked her to check.  She sent me to a breast surgeon that very afternoon, where 3 needle biopsies and a skin biopsy were performed.  I was told that he would send it to the lab and contact me, probably in about a week.  I asked if there was any way to do it faster, so we ended up sending it to an out of pocket lab, but Thank God!  I got the results this a.m., just two days later.  My g.p. also set up a diagnostic mammogram and ultrasound, that took place yesterday, at a facility that actually has an on site radiologist, so she was abl e to guide the technicians as they took exactly the shots she needed.  Talk about God's hand!  So in 24 hours I saw a specialist, a radiologist, had a mammogram and an ultrasound, and within 48 hours had my diagnosis.  I don't like the diagnosis, but am so very grateful to know so quickly. 
I switched internet providers and don't have everybody's email anymore, so please ask other prayers to put me and Harry and Willy in their prayers!


***************************

Sent March 4, 2008
when information had been gathered for diagnosis


From:
Amy Schultz
Sent: Tuesday, March 04, 2008 12:56 PM
Subject: Updates on Amy's battle

 Hello my friends!  I am writing to thank you for your prayers, and to ask you to keep praying.  My battle is only just beginning!  The oncologist shared the results of the pet/ct with me today, and while my organs are basically free from cancer, they think there may be some in my bones in my back.  They mentioned two specific spots, one in my mid back, one right on the bottom.  I will have some bone density scan stuff done this week, and am starting chemo on Monday, the 10th of March. 

 Thanksgivings:  My organs are okay, my heart is fine, strong enough to handle chemo, which is wonderful news considering how long I've had Type I diabetes!  Things are getting authorized and approved quickly.  My oncologist is a wonderful, intelligent man who is highly thought of in the medical community.  He is choosing to treat this very aggressively. My amazing family and my amazing friends that are lifting me daily to the Lord in prayer.

 Prayer Requests:  Protection for my entire family.  We are facing so many things in the midst of this big battle!  First that the bones not have any cancer at all.  Complete health and restoration for them.  That any cancer in my body recede and stop reproducing, that the cancerous cells die and leave my body instead of spreading.  That my healthy, non-cancerous cells stay strong.  That chemo effectively fight and kill the cancer, but that it be gentle on the healthy, normal cells that are not cancerous.  That the side effects of the chemo be manageable.  That my diabetes and other conditions not be worsened during the treatment process.  That God stay with me (I know He will!) and let me know that He is there every minute.  That Willy be safe and protected from harm.  That Harry be safe and protected from harm. 

 Thank you my friends.  May God bless and protect you all as well! 

************************************
This was sent out on March 10, when first chemo was delayed because of last minute error in testing detected by my doctor

From:
Amy Schultz [mailto:aschultz67@yahoo.com]
Sent: Monday, March 10, 2008 8:12 PM
Subject: Amy update 3-10-08 (this is kind of long, so much info!)

Hello my friends!  Thank you so very much for keeping me in your prayers.  I also thank you for the phone calls, the emails, the messages that are letting me know that I am in your heart.  The simple fact that you are praying for me lifts me from despair often.  There were some new developments today.  At first I was upset, but then I realized that every bit of info or change of plan is a direct answer to prayers we have been praying.  I am seeing God, and finding God, all throughout this.  He showed up in surgery.  When they put the portocath in (to ease chemo delivery, it is like a tube to my vein) I woke up to a nurse patting me and saying, God bless you Amy!  I had been talking about God through my happy juice induced stupor for the surgery, talking about how I had many people praying for me, and that that meant they were praying for all the surgeons, nurses, assistants in the operating room as well.  My breast surgeon at my follow up appointment told me he would be thinking good thoughts and praying for me!  Praise God!  God will prevail, and I truly believe He will bring me through this victoriously!
 
I went in for chemo and asked about the results of the genetic protein thing that spreads cancer faster and the estrogen receptor.  The doctor said he got a verbal on Friday saying the genetic protein was a negative, and the estrogen receptor was a positive (both okay with meds.)  He also looked at the results from the latest test, and it turns out there is cancer in my back, probably has been there for awhile. But he was quick to state that it was still amazingly good news that it had not impacted/reached any of my organs, and that we would get started right away blocking it with the chemo.  Then he told me he just wanted to have the lab fax him the protein/estrogen results.  A few minutes later he walked in and asked the nurse if she had started mixing my chemo cocktail yet.  She said no, he said don't, then proceeded to tell me they ran a secondary test on the protein called the FISH, which is actually the gold standard for this, but a lot of labs don't do it, and they often take two weeks because they are so impacted.  Anyways, the FISH test finished this a.m. I think, after the doctor got the verbal, and it was positive for the protein.  That totally changes the chemo, knocks out one of the drugs, and puts in another one called herceptin.  He told me that was the bad news, the positive on the protein, but there was also good news, that herceptin is excellent for use with metastatic cancers (spreading cancers) and it has shown fantastic results in stopping the cancers cold.  Chemo was cancelled because I need to get an authorization for the new chemo, but hopefully this week by Friday I will be hooked up!
 
These are direct answers to prayers.  We have been praying for wisdom and guidance for the doctors.  We have been praying for correct courses of treatment.  How can it be anything but that when the doctor runs in at the last minute, says to stop mixing the chemo, there's something better for me?  We have been praying for wisdom, to know what we are fighting against.   This prayer is also answered in this information.  I have been thinking about this alot, and God knew when he comforted me and affirmed to me that he would bring me through this as He has brought me through so many other physical trials.   He knew this at the beginining.  The added information informs the doctors who are using the medicines developed over time to help me.  Praise God that this is now and not ten years ago!  Praise God that they know how to treat me, and what to do!  Praise God that I have a wonderful holistic doctor who is concerned about my whole self, not just the cancer!
 
I also sat in the room with Harry, my good friend Carmen Blair, and 8 other people receiving chemo, and God let me know again that these people are people that I need to pray for daily.  I don't know all of their names, but I am learning their fears, concerns, and needs.  Perhaps part of the good that will come out of this is that I will know just how to pray for people in this situation, because living it is so different than learning about it!  That is actually another answer to prayer.  I know God wants me to pray for healing for people.  I have known this for years, and I have sought the hows to go about it.  I think He is teaching me.  Please pray that God lets me know what He wants me to know in ways that are idiot proof so I do not miss anything He wants me to know (I would rather not have to repeat this lesson until I get the message right if I miss it!  Ha ha ha)
 
Please continue to pray for me, and for any other cancer victims that you know.  For bodily strength, for freedom from any pain that is not necessary for healing, for a cessation, recession and a death to the cancer cells, for maintenance of healthy body cells through chemo, and most of all for those who know God to feel His hands upon them daily, and for those who don't to find him in this trial!
 
Thank you, and may God bless and protect you all!  -Amy Schultz

************************************
Sent Tuesday, March 11, when there was an unexpected speediness in authorization for the new chemo!

From: Amy Schultz
Sent: Tuesday, March 11, 2008 5:14 PM
Subject: Chemo tomorrow!

I got a call tonight, Tuesday, and the authorization
for the new chemo went through much more quickly than
they thought possible!  I am scheduled tomorrow for
10:00 a.m.  Please keep me in your prayers!  Love, Amy

************************************
Sent after my first chemo session on March 13th
From:
Amy Schultz
Sent: Thursday, March 13, 2008 10:15 AM
Subject: RE: Chemo tomorrow!

HI all!  It was along, exhausting day, but Praise God, I am through it!  Because if was the first day and first dose of the toxins they took a really long time to watch for reactions, which was good,  because I did have a reaction to the taxol, but they stopped it, shot me up with more benadryl and steroids, gave it a rest, and started again.  That was good and bad, because the steroids make my sugars nutty, but basically stop all nausea (hurray, let's face it, I'd rather have extra insulin than get sick!)  It took about 8 hours total, but will take less in three weeks when I go in for the chemo again.  I will be going in weekly for the herceptin (to fight the protein that spreads the cancer in my case) and monthly for the zomeda (bone strengthener).  It sounds like a lot, I just want to say Thank God for my porto-cath.  One stick that I can barely feel and we're good to go all day!  I'm really glad they put that in for me!  God is with me, I know.  I was really exhausted both Tuesday night and last night, and a bit tired today, they said that was normal.  My immune system should be fine until about Tuesday, then we will need to check it on Wednesday.  I'm glad I have the weekend.  Willy wants to take me to see 10,000 B.C. at the movies! 
Anyways, I appreciate the prayers, they are carrying me through the tough times.  I love all you guys!

************************************
Written after the first chemo "cycle" when I had a better idea of what was going on!

On Sun, Mar 23, 2008 at 6:43 PM, Amy Schultz 
wrote:

Hello all my dear friends! 
God bless you!  May you have a joyous Easter!  He is risen indeed! 
I am sorry it has been awhile since I sent you an update.  I've been observing and trying to learn how this is going to work! 
I have made it through my first chemo.  Parts of it were extremely difficult.  Believe it or not, the physical symptoms were not what was unbearable.  Sure, I felt nauseous and lost my appetite a few days, but there were pills to help with that.  The second day after chemo I suffered a severe sense of depression and despair, and it took a few days to lift out.  When I think about what God is teaching me, that was a biggie.  I have always known family and friends that have suffered from depression, but I have never felt the despair of true depression until now.  Now mine was chemically induced, from the chemo and the steroids that are necessary for chemo,  but I feel I do have an understanding now.  Mine also faded after a couple of days, unlike true depression, but again, my eyes have been opened.  The doctor has given me something to help me through this part of the cycle for the next chemo session (March 31st is when it will take place!)
 
My first white blood cell count came back after 1 week and it was excellent.   I am going in for my second one tomorrow (Monday) and I will see.  They said that the white blood cell count will dip to its lowest from day 7 to day 14, which is right about now, so I am praying for a continued strong immunity count because I don't want to get sick, because that would delay the chemo!
 
My appetite came back around day 5 or 6, and I am able to eat regular meals now.  I have to say, though, that I am finding unhealthy food unappealing.  One good result of the illness, I guess!  My body is craving good stuff instead of junk!
 
I am having some mild muscular pain in my back.  It could be a chemo side effect, or it could be that my body is used to exercise and I haven't been exercising enough with the chemo and the prior stinker 6 week cold that wiped me out.  I am walking a bit around the block each day, though!
 
I am going in for herceptin each week, which will fight the genetic positive protein part of this cancer.   
I am going in for Zomeda once a month, which will strengthen my bones and help repair any damage the cancer has done to them.
 
Please continue to pray for healing for me, for continued protection for my organs, for protection for my healthy cells and protection from further damage from the cancer.  Please pray for the growth of healthy non-cancerous cells to replace the dying cancerous cells.  Please pray for protection for my body's systems that are struggling to work as my body is fighting the cancer.  Please pray that there is a complete response of the cancer cells to the chemo, and that the cancer is totallly wiped out.  Please pray for my son and my husband, who struggle daily with me.  Also for any other cancer fighters/survivors that you may know, for health, strength, and courage, as well as comfort in their trials. 
 
Thank you for your continued prayers!  Love, Amy
************************************
Sent March 30, just before my second session of chemo

Amy Schultz wrote:

Hello my dear friends!

 

I am preparing for my second chemo tomorrow.  I am thankful that it is tomorrow instead of Wednesday.  My doctor changed the day for me because Willy is testing for his black belt in tae kwon do on Friday night, and I didn't want that to be my third day!  This way I'll be over the worst and will be able to be there for him!

 

Good news from the doctor last week.  Of course, I didn't think of it as good at first, but when I looked at the whole picture I was very happy.  I went in on Wednesday, and he sat down and told me that I would have another series of tests after a couple more chemo sessions.  He said that with the seriousness/aggressiveness of this cancer that he was not thinking about having it recede, he just wanted to stop it from spreading more.  When I told him that the redness had decreased significantly he was delighted, he said that was great news.  At first all I heard was that it was so serious they weren't trying to stop it.  When I went home and thought about it, trying to make sense of what he had been saying, I thought about specific prayers that my wonderful husband and so many of my friends and family have been praying, that the chemo would not only work, but work even better than expected.  Thank you God!  Yet another prayer answered with a YES!

 

So I am going in tomorrow, excited about more better than expected response to the chemo, yet not looking forward to the yucks and the nausea and the depression.  I think it will be much better this time, the fear is not nearly as strong, because it is not unknown any longer. 

 

I thank you for your continued prayers and support.  Please pray for a complete cancer response to the chemo (so it will be wiped out!) and for protection for my healthy cells, organs and bones and skin.  Please pray for minimal to no side effects.  Please pray that my weight loss be at a healthy rate.  (I've lost about 20 pounds over the last six weeks.  It is slowing down now.  Can you believe it?  for the first time in my life the doctor was happy that I put on a pound!  Never thought that day would ever come!  Talk about finding a bright side......)  Please pray for my son and my husband, who are so strong and wonderful!  Please pray also that we all continue to find joy in the sorrow and the trial.  Laughter is such a healer of the spirit!  Willy and I chuckle over the thought of me walking down the street as a skinny, bald, one breasted woman!  Willy says if anyone says anything he'll just say, "At least she's alive!"  I think that is the right attitude! 

 

Please also pray for the other patients that will be receiving their chemo tomorrow and this week.  Please pray for God's presence in their time of trial, and that they know that He is with them! 

 

May God bless and protect you all!  Love, Amy

************************************

This was sent Tuesday, April 8, 2008
Here is a praise update from Amy Schultz:
 
"Dear friends and family,
"Hooray!  Good news today.  The doctor checked me out, and told me that the chemo was working well, in his words, "this is good news!"  The redness and swelling have decreased significantly. 
"The MRI results are back, and the left breast has a tumor about 3cm. x 5cm., and the right breast is free of cancer.  Also hooray!
"We will continue on with this chemo for a few more sessions, then this summer we will do the scans and the MUGA test again, and will probably do the mastectomy sometime this summer as well.  After that Dr. B. thinks we will do one more round of chemo.  He doesn't think radiation is likely.
"Great news!  I am so happy and relieved to hear another "yes" answer to prayer!  Please continue praying for a complete healing, for complete freedom from cancer, that it go away and never return!  Also for protection for my heart and organs, for protection for my bones and restrengthening of my bones. 
"P.S.  Thanks so much to Karen, the Cavanders, and Lise and Lori and Carmen for their visits and gifts and food!  Thanks so much to everyone for the prayers.  Know that each one of you is precious to me, and that each one of you is taking part in my  healing through the prayers that you are offering! 
"Thank you!  God bless you all!  :0) Love,  Amy"

*********************************************
Amy update Sent 5-2-08
This one includes the incredible witness and ministry in Hollywood!
Saturday, May 3, 2008 9:25 PM
Hello my dear friends! 
I wanted to give you all an update, and thank you all again for your prayers.  God is good, and I see him often in the faces of my friends and brothers and sisters!

I have come halfway through my chemo now.  I have completed three sessions, three more to go for this round, then my surgery.  Dr. B, my oncologist, says we will be doing the scans again in the next month to see what is going on with the actual cancer.  He says that the fact that it appears to have gotten smaller is good news indeed!  I am going in weekly for my infusions of herceptin, which is used to prevent the cancer from spreading, and is the treatment of choice for her 2 neu positive cancers (I may not have spelled that right, it is the funky protein that makes cancer spread more quickly).  I need to "drug" myself up for that one by taking 2 tylenol and 2 benadryl the night before and the morning of treatment.  That is not so bad, I just get sleepy!  It's a lot more work to prepare for the chemo.  I have to take the steroids the night before and the morning of as well as the tylenol and the benadryl. 

The chemo itself is not as bad as it was, but I must admit to feeling more tired this round.  A good friend of mine suggested that this will probably be the norm, and I should just allow myself to rest a bit more when I need to, because I have been using up my energy reserves.  Gee, I feel kinda like I'm being poisoned....(as I laugh ironically, Thank God for the poison that kills the poison!)  I am still feeling pretty good most of the time. I get achey in my bones and muscles.  The doctor says that is from the neupogen (injections I take 6 or 7 days to keep my immunity up) and from the Zomeda (the bone strengthener), but it is nothing I can't handle.  For Pete's sake, I have taken tae kwon do for years, I am used to aches and pains!  I have to admit, though, that I am at the point where I am feeling a bit gripey.  I am so grateful that I am getting through this and that it is working successfully on the cancer, I am just feeling a bit tired of feeling yucky.  Again, it is not serious yuck, aches and occasional nausea, I just miss feeling like my old self.  It's funny, but if you've known me a long time, you know that I have always fought against being a "sick" person, in spite of my diabetes, etc.  Now I am actually having to listen to my body, and rest, and act like a sick person sometimes!  But this is not who I will remain....I am using this time to rebuild and let God work in my body for healing.

I have received so much support.  I have all the cards and notes that I've been sent right by my desk where I can continue to smile over them.  Thanks so much to Karen, Kim and Genie for the wonderful dinners.  Thanks to Carmen for pulling me out for fun lunch dates and ice cream!  I am receiving support and prayers all around.  It's interesting.  I have been remembering a sermon Doug (our pastor at St. Luke's for those of you who worship in a different place than I do!) hosted about God in Hollywood.  He was saying that so many people are not aware of Christian's in Hollywood, and they are there, and that more Christians need to be encouraged to go into show business, etc.  I have been seeing God and Christian love all over Hollywood lately!  Many of you know that Harry has started driving for  the movies.  He drives trucks, vans, delivers stuff, and hangs out on the movie sites, ready to do whatever needs to be done.  He and my cousin Al, who is one of his bosses on site, decided to shave their heads so that I wouldn't be the only bald one at family events...(I love them dearly anyways, but that takes it over the top!)  Al, my cousin, has been telling people that ask why he shaved his head all about me, and asking them to pray (yes, that's right, requesting prayer for me on Hollywood movie sets!)  Harry's other boss has been praying for me daily.  That is very sweet, but even more special when you understand that he had not prayed since his father had passed away.  Harry and Al talked to some of the other transportation guys, they shaved their heads in support of me.  Then the movie director of the movie they are working on saw, asked, and shaved his head!  I see God every day, but especially in the faces of these bald men, many of whom do not know me, but have reached out in love and support of me anyways.  God is indeed present in Hollywood! 

I go in Monday for herceptin and Zomeda, my next chemo will be the day after Mother's day.  Please continue to keep me in your prayers.  Please ask God to continue to heal me, to protect my organs from the cancer, to rebuild my bones, to stop the cancer and to erase it from my body.  Please pray for protection for my organs and for my body from damage from the chemo.  Please pray for God's continued presence and His hands upon me and upon anyone else you know with this stinker of a disease.  Thank you thank you thank you!  May God bless and protect you all!

 

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