My Battle with Inflammatory Breast Cancer
This may not be for everyone, there is some graphic information here, but in sharing my journey I hope I can bring knowledge and understanding to anyone that has been touched by breast cancer!
While this is not a rat-related subject, it is something that I feel needs to be available for people to learn about if they are interested. I am a woman of faith, and I am presenting my journey through emailed prayer requests that I and my husband have sent out to dear friends, family, and brothers and sisters in faith. If you are a believer, I ask for prayers. If you are not, I ask for you to read and consider, and send good thoughts my way!
Sent Feb. 12, first request for prayer on a message board I belong to. Hello my friends! I am writing to thank you for your prayers, and to ask you to keep praying. My battle is only just beginning! The oncologist shared the results of the pet/ct with me today, and while my organs are basically free from cancer, they think there may be some in my bones in my back. They mentioned two specific spots, one in my mid back, one right on the bottom. I will have some bone density scan stuff done this week, and am starting chemo on Monday, the 10th of March. Thanksgivings: My organs are okay, my heart is fine, strong enough to handle chemo, which is wonderful news considering how long I've had Type I diabetes! Things are getting authorized and approved quickly. My oncologist is a wonderful, intelligent man who is highly thought of in the medical community. He is choosing to treat this very aggressively. My amazing family and my amazing friends that are lifting me daily to the Lord in prayer. Prayer Requests: Protection for my entire family. We are facing so many things in the midst of this big battle! First that the bones not have any cancer at all. Complete health and restoration for them. That any cancer in my body recede and stop reproducing, that the cancerous cells die and leave my body instead of spreading. That my healthy, non-cancerous cells stay strong. That chemo effectively fight and kill the cancer, but that it be gentle on the healthy, normal cells that are not cancerous. That the side effects of the chemo be manageable. That my diabetes and other conditions not be worsened during the treatment process. That God stay with me (I know He will!) and let me know that He is there every minute. That Willy be safe and protected from harm. That Harry be safe and protected from harm. Thank you my friends. May God bless and protect you all as well! Amy Schultz wrote: Hello my dear friends! I am preparing for my second chemo tomorrow. I am thankful that it is tomorrow instead of Wednesday. My doctor changed the day for me because Willy is testing for his black belt in tae kwon do on Friday night, and I didn't want that to be my third day! This way I'll be over the worst and will be able to be there for him! Good news from the doctor last week. Of course, I didn't think of it as good at first, but when I looked at the whole picture I was very happy. I went in on Wednesday, and he sat down and told me that I would have another series of tests after a couple more chemo sessions. He said that with the seriousness/aggressiveness of this cancer that he was not thinking about having it recede, he just wanted to stop it from spreading more. When I told him that the redness had decreased significantly he was delighted, he said that was great news. At first all I heard was that it was so serious they weren't trying to stop it. When I went home and thought about it, trying to make sense of what he had been saying, I thought about specific prayers that my wonderful husband and so many of my friends and family have been praying, that the chemo would not only work, but work even better than expected. Thank you God! Yet another prayer answered with a YES! So I am going in tomorrow, excited about more better than expected response to the chemo, yet not looking forward to the yucks and the nausea and the depression. I think it will be much better this time, the fear is not nearly as strong, because it is not unknown any longer. I thank you for your continued prayers and support. Please pray for a complete cancer response to the chemo (so it will be wiped out!) and for protection for my healthy cells, organs and bones and skin. Please pray for minimal to no side effects. Please pray that my weight loss be at a healthy rate. (I've lost about 20 pounds over the last six weeks. It is slowing down now. Can you believe it? for the first time in my life the doctor was happy that I put on a pound! Never thought that day would ever come! Talk about finding a bright side......) Please pray for my son and my husband, who are so strong and wonderful! Please pray also that we all continue to find joy in the sorrow and the trial. Laughter is such a healer of the spirit! Willy and I chuckle over the thought of me walking down the street as a skinny, bald, one breasted woman! Willy says if anyone says anything he'll just say, "At least she's alive!" I think that is the right attitude! Please also pray for the other patients that will be receiving their chemo tomorrow and this week. Please pray for God's presence in their time of trial, and that they know that He is with them! May God bless and protect you all! Love, Amy
Hi all.
I am writing this because I am in need of prayers from all my friends who believe in God. I
have just been diagnosed with inflammatory breast cancer. It is an aggressive form of
cancer, but thank God I have already seen doctors, had biopsies, a mammogram and an
ultrasound, as well as a consult with a breast surgeon all in the last 48 hours. My next step
will be with an oncologist. I ask for prayers for healing, for remission and self containment,
and most of all for my husband and son who are struggling with me. I really appreciate all of
you! Thanks! Amy
P.S. Harry and I will not be at the online meeting tonight. We are going to church for a
special prayer service. We need to be there!
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Sent: Wednesday, February 13, 2008 11:52 AM
Subject: Hi guys! I need your prayers.
I am writing because I desperately need your prayers right now. I have just been diagnosed with inflammatory breast cancer. As we speak I am waiting for an authorization from my health care provider to go see an oncologist. My course will be preadjuvant chemo, then a mastectomy, then more chemo, with the possibility20of radiation after that. Please pray that 1. For Harry and Willy. That Harry and I handle this correctly with Willy, letting him know what he needs to know and allowing reactions, sharing and being honest, but not generating extra fear and worry. Also that Willy have his mom around for a long time yet! 2. That the cancer recede and be localized, so that the mastectomy will take it out completely. I dont' know where it is yet, I am waiting for the oncologist to discover that, but God knows. Please pray that He continue to have his hand on all of this! 3. For complete recovery and healing.
I went in because I have a stinker of a cold, so Monday I went to the doctor, and just asked her to take a peek at my left breast. I had scheduled a physical and a mammogram for the end of February because I was a bit concerned, but just asked her to check. She sent me to a breast surgeon that very afternoon, where 3 needle biopsies and a skin biopsy were performed. I was told that he would send it to the lab and contact me, probably in about a week. I asked if there was any way to do it faster, so we ended up sending it to an out of pocket lab, but Thank God! I got the results this a.m., just two days later. My g.p. also set up a diagnostic mammogram and ultrasound, that took place yesterday, at a facility that actually has an on site radiologist, so she was abl e to guide the technicians as they took exactly the shots she needed. Talk about God's hand! So in 24 hours I saw a specialist, a radiologist, had a mammogram and an ultrasound, and within 48 hours had my diagnosis. I don't like the diagnosis, but am so very grateful to know so quickly.
I switched internet providers and don't have everybody's email anymore, so please ask other prayers to put me and Harry and Willy in their prayers!
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Sent March 4, 2008
when information had been gathered for diagnosis
From: Amy Schultz
Sent: Tuesday, March 04, 2008 12:56 PM
Subject: Updates on Amy's battle
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This was sent out on March 10, when first chemo was delayed because of last minute error in testing detected by my doctor
From: Amy Schultz [mailto:aschultz67@yahoo.com]
Sent: Monday, March 10, 2008 8:12 PM
Subject: Amy update 3-10-08 (this is kind of long, so much info!)
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Sent Tuesday, March 11, when there was an unexpected speediness in authorization for the new chemo!
From: Amy Schultz
Sent: Tuesday, March 11, 2008 5:14 PM
Subject: Chemo tomorrow!
I got a call tonight, Tuesday, and the authorization
for the new chemo went through much more quickly than
they thought possible! I am scheduled tomorrow for
10:00 a.m. Please keep me in your prayers! Love, Amy
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Sent after my first chemo session on March 13th
From: Amy Schultz
Sent: Thursday, March 13, 2008 10:15 AM
Subject: RE: Chemo tomorrow!
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Written after the first chemo "cycle" when I had a better idea of what was going on!
On Sun, Mar 23, 2008 at 6:43 PM, Amy Schultz
wrote:
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Sent March 30, just before my second session of chemo
"Hooray! Good news today. The doctor checked me out, and told me that the chemo was working well, in his words, "this is good news!" The redness and swelling have decreased significantly.
"The MRI results are back, and the left breast has a tumor about 3cm. x 5cm., and the right breast is free of cancer. Also hooray!
"We will continue on with this chemo for a few more sessions, then this summer we will do the scans and the MUGA test again, and will probably do the mastectomy sometime this summer as well. After that Dr. B. thinks we will do one more round of chemo. He doesn't think radiation is likely.
"Great news! I am so happy and relieved to hear another "yes" answer to prayer! Please continue praying for a complete healing, for complete freedom from cancer, that it go away and never return! Also for protection for my heart and organs, for protection for my bones and restrengthening of my bones.
"P.S. Thanks so much to Karen, the Cavanders, and Lise and Lori and Carmen for their visits and gifts and food! Thanks so much to everyone for the prayers. Know that each one of you is precious to me, and that each one of you is taking part in my healing through the prayers that you are offering!
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Amy update Sent 5-2-08
Saturday, May 3, 2008 9:25 PM
I wanted to give you all an update, and thank you all again for your prayers. God is good, and I see him often in the faces of my friends and brothers and sisters!
I have come halfway through my chemo now. I have completed three sessions, three more to go for this round, then my surgery. Dr. B, my oncologist, says we will be doing the scans again in the next month to see what is going on with the actual cancer. He says that the fact that it appears to have gotten smaller is good news indeed! I am going in weekly for my infusions of herceptin, which is used to prevent the cancer from spreading, and is the treatment of choice for her 2 neu positive cancers (I may not have spelled that right, it is the funky protein that makes cancer spread more quickly). I need to "drug" myself up for that one by taking 2 tylenol and 2 benadryl the night before and the morning of treatment. That is not so bad, I just get sleepy! It's a lot more work to prepare for the chemo. I have to take the steroids the night before and the morning of as well as the tylenol and the benadryl.
The chemo itself is not as bad as it was, but I must admit to feeling more tired this round. A good friend of mine suggested that this will probably be the norm, and I should just allow myself to rest a bit more when I need to, because I have been using up my energy reserves. Gee, I feel kinda like I'm being poisoned....(as I laugh ironically, Thank God for the poison that kills the poison!) I am still feeling pretty good most of the time. I get achey in my bones and muscles. The doctor says that is from the neupogen (injections I take 6 or 7 days to keep my immunity up) and from the Zomeda (the bone strengthener), but it is nothing I can't handle. For Pete's sake, I have taken tae kwon do for years, I am used to aches and pains! I have to admit, though, that I am at the point where I am feeling a bit gripey. I am so grateful that I am getting through this and that it is working successfully on the cancer, I am just feeling a bit tired of feeling yucky. Again, it is not serious yuck, aches and occasional nausea, I just miss feeling like my old self. It's funny, but if you've known me a long time, you know that I have always fought against being a "sick" person, in spite of my diabetes, etc. Now I am actually having to listen to my body, and rest, and act like a sick person sometimes! But this is not who I will remain....I am using this time to rebuild and let God work in my body for healing.
I have received so much support. I have all the cards and notes that I've been sent right by my desk where I can continue to smile over them. Thanks so much to Karen, Kim and Genie for the wonderful dinners. Thanks to Carmen for pulling me out for fun lunch dates and ice cream! I am receiving support and prayers all around. It's interesting. I have been remembering a sermon Doug (our pastor at St. Luke's for those of you who worship in a different place than I do!) hosted about God in Hollywood. He was saying that so many people are not aware of Christian's in Hollywood, and they are there, and that more Christians need to be encouraged to go into show business, etc. I have been seeing God and Christian love all over Hollywood lately! Many of you know that Harry has started driving for the movies. He drives trucks, vans, delivers stuff, and hangs out on the movie sites, ready to do whatever needs to be done. He and my cousin Al, who is one of his bosses on site, decided to shave their heads so that I wouldn't be the only bald one at family events...(I love them dearly anyways, but that takes it over the top!) Al, my cousin, has been telling people that ask why he shaved his head all about me, and asking them to pray (yes, that's right, requesting prayer for me on Hollywood movie sets!) Harry's other boss has been praying for me daily. That is very sweet, but even more special when you understand that he had not prayed since his father had passed away. Harry and Al talked to some of the other transportation guys, they shaved their heads in support of me. Then the movie director of the movie they are working on saw, asked, and shaved his head! I see God every day, but especially in the faces of these bald men, many of whom do not know me, but have reached out in love and support of me anyways. God is indeed present in Hollywood!
I go in Monday for herceptin and Zomeda, my next chemo will be the day after Mother's day. Please continue to keep me in your prayers. Please ask God to continue to heal me, to protect my organs from the cancer, to rebuild my bones, to stop the cancer and to erase it from my body. Please pray for protection for my organs and for my body from damage from the chemo. Please pray for God's continued presence and His hands upon me and upon anyone else you know with this stinker of a disease. Thank you thank you thank you! May God bless and protect you all!